(A post I had written and saved)
Little Jesse Luke Weaver joined our family Thursday March 6 @ 7:30 pm. weighing in at a whopping 7lbs. 1.4 oz. It is whopping when they say Preemie/NICU/ 37W 5D G/History of Preemies. And this little fellow surprised us all!
All the detachment struggles, extreme worries, unknowns all walked out the door. My health issues were mostly resolved. I am still struggling with low blood pressure. But at least now I know how to deal with them since we are home.
But when Little Jesse entered this world from a secure place inside of his momma, he still brought the medical questions that were raised for months-but only through Ultra Sound. As my Dr. would tell us- "Between fixable and Non-fixable, this is fixable". And once I had little Jesse laying in my arms, I really did forget about what lay ahead of us. The amount of time my Dr. took studying my Ultra Sounds, answering questions...It was unbelievable. I have learned to never question my Drs. gut feeling on something and she said she has learned vise-versa. So Wednesday evening as Wayne was at a Home Group gathering with all the children, I sat at home by the Wood Cook Stove counting contractions thinking: My gut feeling is that this baby NEEDS to be born. I didn't talk to Wayne about it, because I was afraid I was running on Emotions again. Next morning I had him add the car seat to the list of items I always took along. My Aunt who was working as fill in at the office scanned us, it took 1 hr. to do the scan that they had allotted 15 min. for. Fluid was low. Only 2 pockets instead of 4 could be found. Movement was very sluggish. Till Dr. Keene seen me she had made up her mind what was going to happen and when she heard what I was thinking, decision had been made to send me straight over. I was relieved to be honest. This pregnancy has been the hardest I have ever had. For the last I don't know how many weeks I was living on just yogurt and fruit, loosing an abundance of weight. It got to the point I couldn't even hardly drive anymore-just too weak.
8 1/2 hrs. later after induction Little Jesse was born. And we fell in love with him-oh it was unbelievable.
Friday morning the OB came in to tell me hi, the nurse checked my vitals.....and than it was all about Jesse. The Pediatrix Team came in to question us about what we knew of his 'Double Collecting System'. I also made comment that I noticed that his bladder was really big and always full when I would have ultra sound 1-2 times a week. But being a momma and not a Dr. they dismissed it as just needing to void.
So the 1rst step was Ultra Sound
He came back from that and not much later went for his circumcision.
After he came back from that within an hr. they had a catheter in him and were taking him down to radiology to put a dye in him and see if this was a Kidney Reflux problem or Obstruction.
The poor little fellow had an exhausting day. The nurses didn't even push me to nurse him every two hours. He slept through everything, never gave more than a little whimper over a thing. And by the time late afternoon came, I was the emotionally exhausted one, bawling and crying. But I chose to just love my Hospital stay, It was more like being in a motel, send my man out for a cup of coffee, or down to the 'food floor' they have all kinds of little restaurants down there, Italian, Mexican, Subs, Salad bar...Burgers and Onion rings-just some good stuff! take a shower when ever I felt lead....relax, oh it was great!
The diagnosis came back with it being a Kidney Reflux. On a scale of 1-5, 1 being minor, 5 extreme. Little Jesse's was a grade 5. But please stay with me-IT IS FIXABLE! The only reason they put him through so many tests to figure out what was going on, is so they could get all the ducks in a row for us and we could get home and keep that ball rolling. Also it isn't good to put that much stress on a Kidney, you could start loosing function....
Now the Bladder-He unfortunately has one tank of a bladder. And the concern is that he would have a weak muscle that is not telling him to void. So Saturday morning the same Pediatrix Team of Doctors came in to tell us they were going over his files and noticed he had one wet diaper in 24 hrs. I thought it was more like 2 or 3 ? Their concern as well as ours is something would need done this weekend rather than the next two weeks. But after talking, they said that they felt comfortable letting us go home if we keep a close exact count of wet diapers-and my first thought was cloth diapers! We were released to go home Saturday with more medical records than what I care to take with me, but grateful for the wonderful team of Doctors that cared for us during our stay there. We also have to keep Jesse on a round of antibiotics for two weeks to help prevent infection or an UTI to happen till we get everything lined up to see an Urologist at UVA. So Monday morning.....8:30 sharp we will be at the Pediatrician getting the ball rolling.
~later Kris
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